rideon: Bendy. #ehlersdanlos #eds #ehlersdanlossyndrome #hypermobility
rideon: Full gear. #ehlersdanlos #ringsplints #silverringsplints
rideon: It feels cool that my landlord snapped this photo. #serfstrap #ehlersdanlos #bmmechanicallegs
rideon: image
rideon: Still working on my look
rideon: Iron veins soon
rideon: Friday night MRI crowd
rideon: It's been a long, exhausting weekend. Thanks for being supportive about my little bit of news. Collapsing now.
rideon: Next up: Neurology
rideon: Tools.
rideon: Last night's tests are still rattling my skull.
rideon: #Shoulder #brace #selfie for that #glamorous #ehlersdanlos #lifestyle
rideon: Let's get electric.
rideon: Brains still scrambled from these pretty wires.
rideon: Feeling you, Angelina.
rideon: More testing ordered, few answers received & I got caught in the #hospitalglam act. Could be worse, for sure.
rideon: Stabilizing #silverringsplints with some @georgiavaridakis bling thrown in to brighten my day #ehlersdanlos
rideon: Legit. #hospitalglam
rideon: This tech came to my house to set up a monitoring network and attach my 72 hr EEG. #hospitalglam
rideon: So glad @beyonce is doing a similar look at her shows right now. #hospitalglam #72hrEEG #neurology #brain #EEG
rideon: the best outfit for the day
rideon: yesterday's passageways #hospitalglam
rideon: All up in these guts. #hospitalglam #gi #gastroenterology
rideon: Waiting room edition #hospitalglam
rideon: Back in the swing of it now #hospitalglam #fixthisbody
rideon: Marathon neurological testing today #hospitalglam #exhausted
rideon: After 6 hours, I made it to the other side #hospitalglam #neuro #tests
rideon: #hospitalglam all this week.
rideon: Wrapping up a long week, waiting still. #hospitalglam