rideon: do they like me in blue lips because i can look both breathless and alive #hospitalglam
rideon: #HospitalGlam and Resilience I need a pause from thinking about our dire circumstance to talk about our capacity for survival. As chronically ill and disabled people, we're especially practiced in using everything we have, forging new tools, and moving
rideon: #HospitalGlam: Are you ready to #cripthevote? Make your voice heard on #disability and #healthcare issues.
rideon: Last spring @farrahkarapetian shot me for @marymillicentdesign. The jewelry was gorgeous and I love this shot.
rideon: I can't stomach much of what's happening right now. #HospitalGlam #captioned #invisibleillness #disabled [self portrait in a #gastroenterology exam room. I am sitting on the bed, leaning against the wall like I am over it. I am wearing a crown.]
rideon: It's my birthday. Celbirdtaste. #HospitalGlam #agingwell #disabled #invisibleillness #chronicillness #captioned [self portrait in a doctor's exam room. I am lying sideways on the flattened bed in a wine colored dress, holding my hair to the side of my
rideon: #HospitalGlam + average illnesses When I think I've almost got it together, a little bug will slip in and knock everything off course again. All of my systems go offline, I answer an email then fall asleep for 16 hours, ginger clogs the kitchen drain, an
rideon: #HospitalGlam + Visibility I spent part of the day in research mode, scouring old hard drives for information, and found a trove of photos from years ago. Most were from an extended period during which I actively experienced a lot of trauma, and it shows
rideon: Disability can be extremely unpredictable, meaning most days you go directly from "I woke up like this" to "I'm working like this" to keep up. You may be amazed at the amount of things I accomplish from bed, hovering between a 6-9 on the mankoski pain s